bababoeyasf
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- Oct 10, 2013
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Back story. Last August I was diagnosed with a rare disease (for my age and sex) called myasthenia gravis. It is a auto immune disease that causes extreme muscle weakness. Luckily mine is just in my face and neck muscles. Some people get it in their limbs and it's a real bad deal. My symotoms are more droopy eye lids, double vision, trouble swallowing and sometimes speaking with a slur. It's typical people with my disease have a tumor that is agitating their thymus gland. Well of course I did too and had to have it removed. The only way for them to remove mine was splitting my whole ribcage open like open heart surgery physically moving my heart to operate. That was November 2nd 2016. They sent it off for testing after and guess what....I'm in the very rare group who's tumor was cancerous so time for radiation. After getting my ribcage split open I couldn't lift at all for 3 months. I initially lost a bunch of weight then started to get fat. During radiation I was back in the gym doing what I could. Since the end of March I have been done with everything and feeling like my old self. I take a bunch of medication which sucks but am essentially symptom free. To control my myasthenia gravis I still have to do 3 plasma exchange therapy sessions a week through a central line in my chest.